Wednesday, June 22, 2016

The Loss of Baby B

Today we received the devastating news that our Baby B has a defect that will not sustain life. It has something called omphalocele. In its minor form it has part or all on the intestines on the outside which could be corrected by surgery. In the more severe form, which we have, the heart and liver and intestines are exposed. When the heart is exposed like that, there are no actions they can take. Now our next steps is figuring out what to do to give Baby A the best chance of survival. We were with the doctor from 8am to 11:30 discussing what all this means. The crap thing is they don't know how this happened, it's either a chromosomal abnormality,  a genetic defect which is unlikely because both Ryan and the donor have been heavily screened, or just a really crappy thing that randomly happened during development. We thought today we would be celebrating moving to the second trimester, instead just heartache.  I am so exhausted of getting bad news. The words and things that were discussed with the doctor were just awful. The idea of having twins was just starting to sink in and now we have to say goodbye far to early.

1 comment:

  1. Oh Heather I am so sorry to hear this news. This is just heartbreaking. I'm praying they are able to take the proper measures to save Baby A while you process the loss of sweet Baby B.

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