Week 20 - Anatomy Scan

   On Friday we had our 20 week anatomy scan.  We were both really nervous for it but I am happy to report that everything is OK and our Baby A is still our little fighter.  

   We were there for over an hour.  The ultrasound tech measures everything and then takes pictures of everything.  I told her we were still bad at reading ultrasounds so luckily she labeled everything for us.  It's amazing how tiny the baby is, yet how much detail they are able to see and show us.  We have 10 fingers and 10 toes and a cute little baby nose.  We have a really strong heart and the baby still moves a bunch.  We also saw two kidneys, a great looking spin, shin bones (which are measuring long so she thinks the baby will be tall which is awesome), arm bones and pretty much everything else.  She also was able to look at the brain and said everything looked good there too.  It was all very reassuring and great news to hear.  We have more pictures than we have ever recieved before.  As you can see on the right, we have a cute little baby face profile pic.  Most of the pictures up until now are more alien-like than human.  Some have looked like the Terminator even.  Its awesome to have moved past that and be able to see a little baby now in the photos.

   

   The only difficult part was that after all the good news, I actually started looking at the monitor which I never do.  She was pointing out all kinds of stuff and I momentarily got caught up in the excitement.  Then when she was done with Baby A, she moved over to Baby B.  As soon as she did, I was speechless.  That was the first time I saw our baby since we were here last time and received the horrible news.  Its amazing how much you can miss someone that you never met, but I really do, it's  really hard.  In the beginning it was tough for me knowing that our Baby was still inside me but now I appreciate the fact that I still have some time with it before I say goodbye.  I started taking prenatal yoga and each time they say put your hand over your baby and I always put both hands on my belly and talk to both babies.  I guess in a sense, I'm lucky that I can do that.

   The next big hurdle is our cardiology appointment next week to further check on Baby A. So more fingers crossed please for that one.

Thanks for reading,

HEATHER

Support & Thank You

Ryan and I are so grateful for all the support we have been given over the last few months.  When this first happened we felt so alone and isolated in our struggles, but mainly by choice, it was just too hard to face the world with all of our sadness.

I just wanted to express our gratitude for all of you out there that have done so much for us in your own ways.  At one point we had so many flowers and bouquets there was no more surface space to put them on.  We have recieved cards and food and texts but mainly we have recieved all the love and support that you have sent our way.   It really means alot to us and we can't thank you enough.


Much Love,
Heather & Ryan

Week 16 - Anatomy Scan

At week 16 we went for an early anatomy scan to check on Baby A's heart.  Since the loss of Baby B, our doctor has been overly cautious about everything which we are huge fans of..  At week 16 we couldn't see a lot but we could definitely see the heart, or at least Ryan could, I still can't bring myself to look at the screen for fear of seeing Baby B.  The ultrasound tech could see the perfectly formed heart with all 4 chambers working as they should. Our doctor warned us that we probably wouldn't be able to see much more than the heart so it was to be expected. Ryan said he could see the chambers of the heart too which must have been pretty neat.

We are still going for our regular weekly ultrasound checks as well. Then we go back at week 20 for a full anatomy scan to check on all the organs.  So we pass one hurdle and still have a lot more in front of us.  We are also still going to weekly therapy appointments to work on our grief and loss and that is helping a lot.  The online support groups haven't worked out too well because we haven't found anyone in a situation like ours where they lost one baby and had to continue to be present in their current pregnancy and that dynamic is very different.

Thanks for Reading,
HEATHER

Therapy & Support

Ryan and I decided to seek professional help to assist us in moving forward from this tragedy.  My biggest concern is how do I continue with the pregnancy in a positive way?  Since having to make this awful decision and living through that awful procedure, I haven't been able to continue the way I was before and that scares me for the baby I still have left.  So with that, we found a therapist that has expertise in pregnancy loss.

She was extremely helpful and very understanding of our situation.  A few of the bigger takeaways that she said was :

• Not every pregnant woman is glowing and happy all the time.  There are lots of emotions that go along even with a normal pregnancy and just because I am sad all the time, doesn't mean that I am causing harm to this baby.
• As human beings, we have the ability to feel multiple feelings at the same time.  The example she gave was when we get mad at a loved one.  While we love them, we can be mad at and angry at them at the same time.  So she said that with time, she feels that I can still feel angry and sad over the loss of baby B and still feel love and excitement towards baby A.

We will continue to see her on a weekly basis for now.  She also recommended a few support groups (Empty Cradle and A Heartbreaking Choice) for us that I have joined, but haven't attended yet.  Just the names alone are tough to digest.  I am still somewhat numb and in disbelief that this has become our reality.  Empty Cradle is a local support group here in San Diego for those dealing with pregnancy loss.  They have paired me up with someone that also had twin loss, but we haven't connected yet.  A Heartbreaking Choice is a national online forum for those that have had to make the painful decision to terminate a pregnancy due to the health of the fetus or your own health.  I just submitted my registration information for that board.  

One of the harder things I'm coping with is up until now, everything I have gone through, I've know someone else through the infertility world that has also gone through something similar.  Our situation now is so awful and so rare that no one else I know has been through this.  It's not the same thing as a vanishing twin or a miscarriage.  The end of life didn't happen on its own.  Ryan and I had to make the decision to end a life.  Even though we knew it was the right thing to do, the emotional side of that is awful.  Making an appointment like that is awful.  Being awake for that is awful.  Having baby B still with us and will be for the rest of the pregnancy is just beyond difficult to emotionally wrap our heads around.  And after finally building a huge amount of support around us, we find ourselves isolated and alone again is really tough.  I am really hoping that with these two other support groups, we can again find ourselves in a place of understanding.

Thanks for reading and thanks for the support,

Heather & Ryan

Our Little Fighter

Today we went in for our follow up ultrasound to check on Baby A and happily I can report that Baby A is still with us.  We were faced with an 8% chance of losing Baby A so we are very relieved that our little fighter is still with us.

On the other hand, there really aren't too many words to explain the heartbreak we are dealing with for Baby B.  We were literally one day away from being let off bed rest, entering the second trimester and starting to celebrate the pregnancy.  Instead we were hit with the horrifying news that Baby B would be lost to us and would not survive much longer after birth.   Having to decided to end that pregnancy to give Baby A the best chance is the hardest thing we have ever had to do.  I will never forget that appointment or the feeling of having to say goodbye to our sweet baby.

We have reached out to a therapist to get some professional help.  We need help.  We need to figure out how to remain strong for Baby A while still grieving this loss.

Thank you for reading and thank you for your support.

The Loss of Baby B

Today we received the devastating news that our Baby B has a defect that will not sustain life. It has something called omphalocele. In its minor form it has part or all on the intestines on the outside which could be corrected by surgery. In the more severe form, which we have, the heart and liver and intestines are exposed. When the heart is exposed like that, there are no actions they can take. Now our next steps is figuring out what to do to give Baby A the best chance of survival. We were with the doctor from 8am to 11:30 discussing what all this means. The crap thing is they don't know how this happened, it's either a chromosomal abnormality,  a genetic defect which is unlikely because both Ryan and the donor have been heavily screened, or just a really crappy thing that randomly happened during development. We thought today we would be celebrating moving to the second trimester, instead just heartache.  I am so exhausted of getting bad news. The words and things that were discussed with the doctor were just awful. The idea of having twins was just starting to sink in and now we have to say goodbye far to early.

Meeting Our OB

Yesterday was very exciting, we met our OB for the first time.  He will be our doctor for the next 6 months and if all goes as planned, will deliver our babies.  He is part of a practice so it's kind of whoever is on duty at the time.  It was an exciting appoint because for the first time, we had an appointment where we talked about the babies actually coming into the world.  It was it all so real in an amazingly wonderful way.

Our doctor is an MFM which stands for maternal fetal medicine.  It is basically a specialized OB for high risk pregnancies.  This pregnancy is considered a high risk pregnancy because I am of advanced maternal age (I hate this phrase), anyone over 35 falls into that category, because I have multiples, because I am on blood thinners and because of the complications early on in the pregnancy.

About 2 minutes into meeting him, I knew he was the doctor for me.  He had actually delivered my friends twins so I knew he was capable, I just also really liked his personality.  He knew of my IF journey and he reassured me that since we had worked so hard to get where we were that he would do everything to ensure these babies are safe and healthy and so am I.

He made a comment about how I probably know a lot already about being pregnant and I said I really didn't.  The last 5 1/2 years I have spent researching getting pregnant, I have no idea what I am doing from this point on.  He assured me that even though I don't know what I am doing, my does and it is doing everything it can so that the babies are getting what they need.

He did an ultrasound and this part was very exciting.  It was an ultrasound from on top of my stomach, no more vaginal ultrasounds!!!! This alone is a reason to celebrate.  He said everything looked good and the babies looked great.  He didn't see anything to be concerned about.  He also did a pap smear because it had been two years since I had one done.  Thankfully he skipped the breast exam because mine are so painful right now.

We talked at length about a vaginal birth compared to a C-section.  He would prefer a vaginal birth which I would too.  He gave me a 60% chance of having one which is what all people carrying twins gets.  In order to deliver vaginally, the baby further down needs to be face down and needs to be bigger than the top baby.  We will figure this out much later, but he did tell me that baby B is the baby that is further down so that's the one to watch.  The other exciting news it that he calculated my due date.  For twins, they won't let you go past 38 weeks, so if my water doesn't break before that, they will induce on Dec 21st (my birthday) for a delivery on Dec 22nd.  I am so excited about that.  Our nephew was born on Dec 24th so lots of Christmas babies in this family.  I am also excited that I will deliver at Sharp hospital, which is the same hospital I was born at.

He then talked about what the next 6 months will be like.  He started by saying I come in every month for ultrasounds and an OB check.  I freaked out when he said this.  I am so used to weekly appointments that monthly sounded like an eternity.  He then said he would do an appointment very two weeks for me to help ease the anxiety and keep my calm.  This really did help and reassure my choice in doctors.

Here is the quick recap of my notes and the questions I had for him:

• My RE had a weaning protocol for baby aspirin but he wants me to stay on them the entire pregnancy
• for the next two weeks, I can walk and drive, then after that I can do yoga and swim.  After 68 days of bedrest, this was music to my ears.
• He wants me eating 2500 calories a day.  I am nowhere near that because food is super gross right now.  I'm working on it though..
• For nausea, he wants me to try taking B6
• I asked if there was anything I could do for breast tenderness and he said not really.  The good news though is that the height of the pain is around 11 weeks and that is less than a week away so it's almost over.
• I asked what books he recommended and he like What to Expect and the Mayo Clinic Guide

We finished the appointment by talking about all the testing to be done.  We walked next door to the lab and I gave about 10 vials of blood.  This was called first trimester screening.  We will get the results at our next appointment which is June 22nd.

Thanks for Reading,

HEATHER